16 minutes ago, NVeagle said:

Found out on June 3, 2020 Stage IV Cholangiocarcinoma.

8 cycles of GemOx chemo helped but "C" beat it.  

On to further testing for next best course of treatment to start in a few weeks.

Every day I wake up is a good day.

God is in control.

I'm at peace regardless of the outcome.

Praying for wife and son to be strong.

Jesus. I’m so sorry to hear that.  It sucks when a lot of your life after diagnosis is a  day at a time   

 

Sue.  Mr.  Di’s 1st cousin.  Her husband died same cancer as Mr Di.  Her daughter is gettting married this weekend.  I think the same.   
 

8 hours ago, NVeagle said:

Found out on June 3, 2020 Stage IV Cholangiocarcinoma.

8 cycles of GemOx chemo helped but "C" beat it.  

On to further testing for next best course of treatment to start in a few weeks.

Every day I wake up is a good day.

God is in control.

I'm at peace regardless of the outcome.

Praying for wife and son to be strong.

Wishing you and your family all the best. That sucks

8 hours ago, NVeagle said:

Found out on June 3, 2020 Stage IV Cholangiocarcinoma.

8 cycles of GemOx chemo helped but "C" beat it.  

On to further testing for next best course of treatment to start in a few weeks.

Every day I wake up is a good day.

God is in control.

I'm at peace regardless of the outcome.

Praying for wife and son to be strong.

Wow, so sorry to hear this. Thoughts are with you and your family through this difficult time. 

2020 has been a real crap sandwich of a year all around.

I won't go into details, despite it all, I am a lucky man. Working, reasonably healthy, wife, daughters and granddaughters all doing as well as can be expected.

Lots of trauma. Lots of loss.

Breathe in, breathe out. The only way out is through.

5 hours ago, Toastrel said:

2020 has been a real crap sandwich of a year all around.

I won't go into details, despite it all, I am a lucky man. Working, reasonably healthy, wife, daughters and granddaughters all doing as well as can be expected.

Lots of trauma. Lots of loss.

Breathe in, breathe out. The only way out is through.

Even the expected losses are hard.  Got a message this morning my mother's best friends husband passed away (87) Married 66 yrs!   His obit is about 4 sentences but he was a great guy.  They had no children.  She is still living (but I don't know where) and has health issues as well.  Most likely why the obit was so short.  I'd like to send a card!  I heard she is in a rehab facility, but don't know which one and it's probably not her permanent address.   I may just make the contribution listed and it will get to her.  No funeral -says at a later date, thanks covid.

15 minutes ago, DiPros said:

Even the expected losses are hard.  Got a message this morning my mother's best friends husband passed away (87) Married 66 yrs!   His obit is about 4 sentences but he was a great guy.  They had no children.  She is still living (but I don't know where) and has health issues as well.  Most likely why the obit was so short.  I'd like to send a card!  I heard she is in a rehab facility, but don't know which one and it's probably not her permanent address.   I may just make the contribution listed and it will get to her.  No funeral -says at a later date, thanks covid.

So very sorry. It just seems to go on and on.

4 minutes ago, Toastrel said:

So very sorry. It just seems to go on and on.

Just informed my siblings.   They didn't know.    They were my sister's Godparents.  She still kept in touch with them after our Mom passed.  We'll figure what we're doing here directly.  Thanks for listening!

25 minutes ago, DiPros said:

Just informed my siblings.   They didn't know.    They were my sister's Godparents.  She still kept in touch with them after our Mom passed.  We'll figure what we're doing here directly.  Thanks for listening!

Thanks for being a good human being.

So, being a Virgo I'm making a plan.  It's gonna rain, and it's going to start to stink in here again.  When I get home tomorrow IF it's overwhelming I am going to call the LL.  Again!   If he's available that is what I need. He needs to smell it.  He's been here 3x's but he can't smell anything.  Apparently my word is not good enough.  It's his culture women belong in the kitchen and take care of the kids.   Last Friday when it was bad (AFTER it rained!) he was not available. He said he would come on Saturday.  OK, I said call me first to be sure the stink was present.  NEVER called me.  Stink was gone by Sunday morning.  I put a curse on this man.  I know he misses Mr. Di.  I do believe his tears were real when he died, but to treat me like this now?  Can't fix stupid.  Depending on what conditions are tomorrow  if it stinks and he can come, I'm leaving.  I do not want to be in his presence. Not now.  Maybe not ever.  I so want this resolved.  Reasonably.  Without me becoming a maniac, and a raging alcoholic. 

So sorry about Stink. As really hated however the way he mistreated you. So sorry!

Lost my Uncle last week. 75 years old. He was sick for about 6 months with 2 different Cancers.

Tough year. 

On 11/2/2020 at 5:51 PM, LacesOut said:

Lost my Uncle last week. 75 years old. He was sick for about 6 months with 2 different Cancers.

Tough year. 

RIP.

On 11/2/2020 at 8:51 PM, LacesOut said:

Lost my Uncle last week. 75 years old. He was sick for about 6 months with 2 different Cancers.

Tough year. 

Haven't checked this thread for awhile.  Sorry about your Uncle Laces. ☹️

My best friends father is dying from cancer as well.  84 or 85 I think.  He's at home, on hospice, just wasting away until it's time.  He and Mr. Di had the same oncologist.  He called to check and talk to Mr. Di from time to time, and of course he called me when he passed.  Such a sweet, honest, and hard working man.  I can only pray he won't have to suffer too much longer.

NV, hope you're hanging in there. 

I could write and *itch for days.  Still need help at home with the gas odor.  Maybe this week.  It's been off an on, off and on, and I can only describe my situation in a word, "fatigue."

39 minutes ago, DiPros said:

Still need help at home with the gas odor.  Maybe this week.  It's been off an on, off and on, and I can only describe my situation in a word, "fatigue."

are you on city sewer? do you have to pump your sewer to a city line? do you live near a sewer pumping station? do you have a basement with floor drains?

4 minutes ago, NCTANK said:

are you on city sewer? do you have to pump your sewer to a city line? do you live near a sewer pumping station? do you have a basement with floor drains?

Me and 3 other units drain into a septic tank which is then pumped up though the property to the city sewer.  The pump is working and the tank has been pumped out.  No one else has this problem.  It's got to be a cracked pipe from house to tank that is getting infiltrated with ground or storm water, and/or omitting the odor back into the house when the conditions are right.  No basement floor drain.  Vent pipe is fine.  No visible leaks in the basement.  I was going to start taking down the ceiling to expose more piping to check but I didn't have any help and I can't find the screw gun.   Have rain in the forecast so Wed or Thurs I will be calling the LL when it's bad and he can finally smell it for himself.  I didn't call last time cause I was too busy and couldn't deal with him, and if I keep water in everything it doesn't cure it but helps greatly.  

That's what I think is wrong. I think the only way to find it is a smoke test.  One from house to tank, and if can block off where it comes in the house, check the inside pipes as well? We'll see. This is the kind of crap I wish I've could've gone through life not knowing anything about, and now I can't "un" know it.  Thus, the fatigue.

 

how old is the house? do you know if the downspouts are tied into the sewer line from the house to the septic tank? they shouldn’t be but it’s a question worth asking. do you have old cast iron waste pipes inside the house or basement? is there a sump pump in the basement? if so, does it pump to the septic tank?

33 minutes ago, NCTANK said:

how old is the house? do you know if the downspouts are tied into the sewer line from the house to the septic tank? they shouldn’t be but it’s a question worth asking. do you have old cast iron waste pipes inside the house or basement? is there a sump pump in the basement? if so, does it pump to the septic tank?

52 yrs old.  No downspouts going into tank. No sump pump or cast iron pipes in the house.  There is most likely other water pipes in the ground not hooked up to anything if that would make a  difference.

Starting Chemo Round Two tommorow.  God is in control and I'm fighting with His strength.

I know this round of side effects will be harder than Round 1. 

2 hours ago, NVeagle said:

Starting Chemo Round Two tommorow.  God is in control and I'm fighting with His strength.

I know this round of side effects will be harder than Round 1. 

If you don’t mind me asking, is it one chemo drug or a combo?   Are you being treated at a good place?  Not that there’s bad. Some are better.  And this treatment is following NCCN guidelines?  Positivity matters. Your care team matters. Tell them of any side effects.  They can adjust the pre meds and after. Your diet after and during matters to.  As you know. Just pulling for you that you get a good response!   On Eagles wings!   Go NV! Fly baby! 

34 minutes ago, DiPros said:

 

Thank you!

Chemo combo, GemTaxol.  First round I was on GemOX which "C" became resistant too. It helped up to cycle 6, then cycle 7 & 8 were ineffective.

Being treated in Los Angeles with Doc associated with JWCI.

We have about 5 other treatment options that should be effective after this seeing how this round works.

Seek and destroy those nasty little cells NV!

 

I really hope this is the last week I have to write about this.  I hope my LL is available when this odor comes back and I call him for the 30th time and that he will help me get rid of it! It's going to get bad when it starts raining.  I'm out of Pine Sol. I'm going to empty all the drains and just let 'er rip.  I'll go to my son's house if I can't stand it.  I really can't take much more.  

13 hours ago, DiPros said:

 

Praying you get that taken care of!

Although it's hard God never gives you can't handle and answers in ways we don't always see untill it is revelled later.

So sorry Di Pros. Hope it will go your way.

It’s raining. No smelll. Yet.  Went into a 2nd bottle.  I feel like I have no purpose now.  I want my kids to fly. I feel they need me but I just want to go.  My plan is not working.  I

Another dreadful day. I hate feeling this way.  Dread, dread, dread.  I just want to feel safe.  I'm trying.  No odor present this morning.  I emptied all the drains, closed the place up, took a shower, and just for good measure threw in a load of wash.  Will go home at lunch to check.  If it stinks I can call the LL, if not I will continue to drive myself insane.